Affiliated to research
I am a RN, and have been working in rheumatology since 1991. In 2004 I became involved in a clinical research project following the cohort of patients with systemic lupus erythematosus (SLE) at the Karolinska University Hospital. In 2012 I defended my thesis “Fatigue, perceived, described and assessed in systemic lupus erythematosus” at KI. http://hdl.handle.net/10616/41121
In 2013 I began as Postdoc at Uppsala University, where I stayed for 15 months in the research group of Professor Åsenlöf (Department of Neuroscience, Physiotherapy). https://katalog.uu.se/empinfo/?id=N96-6121
I returned to Karolinska University hospital in April 2014, and got a position as University nurse at the Rheumatology clinic in November the same year. This position was a three year project facilitating the combination of clinic, teaching and research, with affiliation to the research group of Professor Christina Opava. http://ki.se/nvs/fysisk-aktivitet-och-halsa-vid-reumatisk-sjukdom During this period I was also involved in e-Health projects under 4D arthritis, Bridging the gap between health-care and research https://ki.se/samverkan/resultat-och-losningar-program-4d .
From 2017 I have the position as Director of Nursing Development, Inflammation and Ageing Theme Karolinska University Hospital.
In 2021 I returned to the reseach group of Professor Elisabet Svenungssons https://medarbetare.ki.se/people/elisabet-svenungsson
Vårdsakkunnig sjuksköterska, RPO Reumatiska sjukdomar 2020-2022 sjukdomar https://vardgivarguiden.se/kunskapsstod/sakkunniga/vardsak/
My current reseach focus is on Patients' perceptions of systemic inflammatory disorders, with special focus on focus on patients perceptions of disease, symptoms and informational needs in systemic lupus erythematosus and Antineutrophilic cytoplasmatic antibody associated vasculitis.
We are currently working with the electronic implementation of the Quick Systemic Lupus Activity Questionnaire (Q-SLAQ): a simplified version of SLAQ for patient-reported disease activity, into the Swedish Rheumatology Quality Register https://srq.nu/en/welcome/
Certificate in Nursing, General Nursing, RN (1988)
BSc in International Nursing (1994)
BSc in Nursing Education (1997)
MSc in Medical Science (2006)
PhD in Medical Science (2012)
Academic honours, awards and prizes
Reumatikerfondens Vårdforskningsstipendium 2016